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The seminar presented an overview on research that was done on the experience of young people who live with and support a parent who has an illness or a disability. The contend covered the traditional key research (psychological, medical, and disability right perspective), current research gaps (such as few large-scale quantitative studies, most study use qualitative methodologies, few psychometrically valid and reliable measures, lack of research outside U.K., and lack of theory driven research), two particular studies: the Youth and Family Health Survey (YAFHS) and Coping with Parental Multiple Sclerosis (MS), theoretical frameworks (such as stress and coping theory, attachment theory, and family ecology framework) that related to the field, policy directions, service and intervention directions, and future research directions (Pakenham, 2011).
Family members, especially a parent who has a chronic illness or disability, often rely on children to provide adult-like family caregiving immediately and continuously. These children aged between 5-25 years (mean age 12-13)